Behavior of overburden in Primary Informal Caregivers of old people with stroke
Keywords:
AGED, NONCOMMUNICABLE DISEASES, CEREBROVASCULAR DISORDERS, STROKE, CAREGIVERS, OLD AGE ASSISTANCE, WORKLOAD, BURNOUT, PROFESSIONAL, QUALITY OF LIFE.Abstract
Introduction: the informal caregiver plays an important role in the structure of families with dependent old people with stroke.
Objective: to determine the behavior of overburden in informal caregivers of old people with stroke.
Methods: analytical, cross-sectional study in a sample of 207 old people with stroke and their respective caregivers, chosen at simple random probability, belonging to Pedro Borras Astorga and Raul Sanchez Rodriguez university polyclinics, during 2018. Instruments were applied to collect the information to the variables studied, analyzing the univariate and the bivariate ones and through multiple linear regression.
Results: female caregivers predominated, age group 30-44 years, with slight overburden and insufficient social support, 86,61 % did not present previous training. When carrying out care tasks the average was 41,87 months, with 5.68 hours of care per day. Except for the sex of the caregiver, the other socio-demographic variables related to care showed a very significant association from the statistical view point with the presence of overburden (p<0,001). Severe neurological impairment was present in 35.27% of old people, and 56,03% of caregivers showed a regular quality of life; the latter variable was inversely and moderately related to the presence of overburden [p=0,000000; r=-0,443321].
Conclusions: slight overburden predominated, influenced by the presence of sociodemographic variables linked to the work of care; the relationship between overburden along with an affected quality of life of caregivers was identified.
Downloads
References
1. del-Pino-Casado R, Cardosa MR, López-Martínez C, Orgeta V. The association between subjective caregiver burden and depressive symptoms in carers of older relatives: A systematic review and meta-analysis. PLoS ONE [Internet]. 2019 [citado 12/06/2019]; 14(5): e0217648. Disponible en: http://doi.org/10.1371/journal.pone.0217648
2. Linares Cánovas LP. Enfermedades crónicas no transmisibles en el adulto mayor. Univ Méd Pinareña [Internet]. 2018 [citado 12/06/2019]; 14(2): 195-196. Disponible en: http://galeno.pri.sld.cu/index.php/galeno/article/view/547/html
3. Savini S, Buck HG, Dickson VV, Simeone S, Pucciarelli G, Fida R, et al. Quality of life in stroke survivor-caregiver dyads: A new conceptual framework and longitudinal study protocol. Journal of Advanced Nursing [Internet]. 2015 [citado 12/06/2019]; 71(3): 676-687. Disponible en: http://doi.org/10.1111/jan.12524
4. Lemus Fajardo NM, Linares Cánovas LP, Lazo Herrera LA, Linares Cánovas LB. Caracterización de adultos mayores con ictus. Acta Médica del Centro [Internet]. 2019 [citado 12/06/2019]; 13 (3): 304-314. Disponible en: http://www.medigraphic.com/pdfs/medicadelcentro/mec-2019/mec193c.pdf
5. da Costa TF, de Freitas Macêdo Costa KN, das Graças Melo Fernandes M, Martins KP, da Silva Brito S. Quality of life of caregivers for patients of cerebrovascular accidents: Association of (socio-demographic) characteristics and burden. Revista da Escola de Enfermagem [Internet]. 2015 [citado 12/06/2019]; 49(2): 245-252. Disponible en: http://dx.doi.org/10.1590/S0080-623420150000200009
6. Palacios E, Pinzón D. Sobrecarga, ansiedad y depresión en el cuidador de paciente con enfermedad cerebrovascular. Repertorio de Medicina y Cirugía [Internet]. 2017 [citado 12/06/2019]; 26(2): 118-120. Disponible en: http://doi.org/10.1016/j.reper.2017.04.003
7. White CL, Brady TL, Saucedo LL, Motz D, Sharp J, Birnbaum L. Towards a better understanding of readmissions after stroke: partnering with stroke survivors and caregivers. J Clin Nurs [Internet]. 2015 [citado 12/06/2019]; 24(7-8): 1091-100. Disponible en: http://doi.org/10.1111/jocn.12739
8. Cameron JI, Naglie G, Silver FL, Gignac MAM. Stroke family caregivers’ support needs change across the care continuum: a qualitative study using the timing it right framework. Disabil Rehabil [Internet]. 2013 [citado 12/06/2019]; 35(4): 315-24. Disponible en: http://doi.org/10.3109/09638288.2012.691937
9. Sacre González MD, Velázquez Valdés MA, Castillo Ordaz M, Pastrana Trujillo L, Trujillo Morejón N. Caracterización de los cuidadores de adultos mayores hemipléjicos a causa de enfermedad cerebrovascular. MEDISAN [Internet]. 2017 [citado 12/06/2019]; 21(8): [aprox. 0 p.]. Disponible en: http://www.medisan.sld.cu/index.php/san/article/view/951
10. Pucciarelli G, Lee CS, Lyons KS, Simeone S, Alvaro R, Vellone E. Quality of Life Trajectories Among Stroke Survivors and the Related Changes in Caregiver Outcomes: A Growth Mixture Study. Archives of Physical Medicine and Rehabilitation [Internet]. 2019 [citado 12/06/2019]; 100(3): 433-440.e1. Disponible en: https://doi.org/10.1016/j.apmr.2018.07.428
11. Díaz M, Estévez A, Momeñe J, Ozerinjauregi N. Social support in the relationship between perceived informal caregiver burden and general health of female caregivers. Ansiedad y Estres [Internet]. 2019 [citado 12/06/2019]; 25(1): 20-27. https://doi.org/10.1016/j.anyes.2019.04.001
12. Camak DJ. Addressing the burden of stroke caregivers: A literature review. J Clin Nurs [Internet]. 2015 [citado 12/06/2019]; 24: 2376–82. Disponible en: https://doi.org/10.1111/jocn.12884
13. Day CB, Bierhals CCBK, Santos NO, Mocellin D, Predebon ML, dal Pizzol FLF, Paskulin LMG. Nursing home care educational intervention for family caregivers of older adults post stroke (SHARE): Study protocol for a randomised trial. Trials [Internet]. 2018 [citado 12/06/2019]; 19(1) 96. Disponible en: https://doi.org/10.1186/s13063-018-2454-5
14. Zhu W, Jiang Y. A Meta-analytic Study of Predictors for Informal Caregiver Burden in Patients With Stroke. Journal of Stroke and Cerebrovascular Diseases [Internet]. 2018 [citado 12/06/2019]; 27(12): 3636-3646. Disponible en: https://doi.org/10.1016/j.jstrokecerebrovasdis.2018.08.037
15. Lu Q, Mårtensson J, Zhao Y, Johansson L. Living on the edge: Family caregivers’ experiences of caring for post-stroke family members in China: A qualitative study. International Journal of Nursing Studies [Internet]. 2019 [citado 12/06/2019]; 94(6): 1-8. https://doi.org/10.1016/j.ijnurstu.2019.02.016
16. Turtós Carbonell LB, Rodríguez Rosa Y, Rodríguez Abreu Y, Omar Martínez E. Caracterización demográfica de cuidadores informales de ancianos con ictus y demencias en Santiago de Cuba. Revista Encuentros, Universidad Autónoma del Caribe [Internet]. 2016 [citado 12/06/2019]; 14(2):61-72. Disponible en: http://dx.doi.org/10.15665/re.v14i2.795
17. Pucciarelli G, Ausili D, Galbussera AA, Rebora P, Savini S, Simeone S, et al. Quality of life, anxiety, depression and burden among stroke caregivers: A longitudinal, observational multicentre study. Journal of Advanced Nursing [Internet]. 2018 [citado 12/06/2019]; 74(8): 1875-1887. Disponible en: https://doi.org/10.1111/jan.13695
Published
How to Cite
Issue
Section
License
Authors who have publications with this journal agree to the following terms: Authors will retain their copyrights and grant the journal the right of first publication of their work, which will be publication of their work, which will be simultaneously subject to the Creative Commons Attribution License (CC-BY-NC 4.0) that allows third parties to share the work as long as its author and first publication in this journal are indicated.
Authors may adopt other non-exclusive license agreements for distribution of the published version of the work (e.g.: deposit it in an institutional telematic archive or publish it in a volume). Likewise, and according to the recommendations of the Medical Sciences Editorial (ECIMED), authors must declare in each article their contribution according to the CRediT taxonomy (contributor roles). This taxonomy includes 14 roles, which can be used to represent the tasks typically performed by contributors in scientific academic production. It should be consulted in monograph) whenever initial publication in this journal is indicated. Authors are allowed and encouraged to disseminate their work through the Internet (e.g., in institutional telematic archives or on their web page) before and during the submission process, which may produce interesting exchanges and increase citations of the published work. (See The effect of open access). https://casrai.org/credit/