Psychosocial characterization of informal caregivers of patients with severe motor disabilities
Keywords:
CAREGIVERS, PATIENTS, DISABILITY.Abstract
Introduction: the informal caregiver is a person who performs a series of activities that include feeding, providing medication, mobilization and/or any other assistance action that ensures the patient's functioning in a satisfactory manner, without having, in general, remuneration for the task.
Objective: to psychosocially characterize informal caregivers of patients with severe motor disabilities admitted to the Rehabilitation Service.
Methods: an observational, descriptive, cross-sectional research was carried out. The universe was constituted by 23 caregivers of patients with severe motor disability hospitalized in the Rehabilitation Service of the Clinical Surgical Teaching Hospital “Dr. “Dr. León Cuervo Rubio". The sample was selected by means of a non-probabilistic purposive sampling, and the sample consisted of 20 caregivers.
Results: predominance of informal caregivers aged 46 years or older (80 %). Prevalence of female sex (75 %). High percentage of caregivers with university education (40 %). 25 % of the participants were unemployed, while another 25 % were retired. The majority of caregivers were daughters (45 %). Caregivers who had been caregivers for six months to one year (40 %), but also for one to five years (40 %), were predominant. The presence of psychosomatic diseases stood out; the most frequent health condition being.
Conclusions: The need for care does not end with the person in need of care, but extends to one of the main concerns of today's society and particularly of the health sciences in the coming decades: caregivers.
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1. Organización Mundial de la Salud. Discapacidad y Salud [Internet]. Washington, D.C.: OMS; 2020 [citado 20/02/23]. Disponible en: https://www.who.int/es/news-room/fact-sheets/detail/disability-and-health
2. Organización Panamericana de la Salud. Discapacidad [Internet]. OPS; 2022 [citado 20/02/23]. Disponible en: https://www.paho.org/es/temas/discapacidad
3. Prensa Latina. Cuba destaca por atención a personas con discapacidad [Internet]. Prensa Latina; 2019 [citado 20/02/23]. Disponible en: https://www.prensa-latina.cu/index.php?o=rn&id=423000&SEO=destacan-fortalezas-de-la-asistencia-y-seguridad-social-en-cuba
4. Pérez J, Garaigordobil M. Discapacidad motriz: Autoconcepto, autoestima y síntomas psicopatológicos Estudios de Psicología [Internet]. 2007 [citado 20/ 02/23]; 28(3): 343–357. Disponible en: https://doi.org/10.1174/021093907782506434
5. Santiago R, Domínguez B, Peláez V, Rincón S, y Orea A. Sobrecarga y autoeficacia percibida en cui -dadores primarios informales de pacientes con insuficiencia cardíaca. Revista Clínica de Medicina de Familia [Internet]. 2016 [citado 20/ 02/23]; 9(3): 152-158. Disponible en: https://scielo.isciii.es/scielo.php?script=sci_arttext&pid=S1699-695X2016000300004
6. Espín AM. Caracterización psicosocial de cuidadores informales de adultos mayores con demencia. Rev Cubana Salud Pública [Internet]. 2008 [citado 20/02/23]; 34(3). Disponible en: http://scielo.sld.cu/scielo.php?script=sci_arttext&pid=S0864-34662008000300008&lng=es.
7. Quintero O, González Y, Amador D, Quintero FH. Validez de apariencia y de contenido de la Escala de Resiliencia SV-RES en cuidadores cubanos. Summa Psicológica [Internet]. 2021 [citado 21/02/23]; 18(2): 28–39. Disponible en: file:///C:/Users/mariaelena/Downloads/490-Texto%20del%20art%C3%ADculo-2489-1-10-20211216.pdf
8. Escobar P, Escobar J, Acevedo MJ, Ginard MA. Concepto de la Historia Clínica. Ocronos [Internet]. 2021 [citado 20/02/23]; 4(5): 140. Disponible en: https://revistamedica.com/concepto-historia-clinica/
9. Loewen SC, Anderson BA. Reliability of the modified motor assessment scale and the Barthel Index. PhysTher [Internet]. 1988 [citado 20/02/23]; 68(7): 1077-1081. Disponible en: https://pubmed.ncbi.nlm.nih.gov/3387463/
10. Espín AM, Seco T, Nuez MB, De la Hierrezuelo S, González J, Méndez T. Metodología de intervención educativo-terapéutica en cuidadores de ancianos con demencia de Alzheimer. Revista Argentina De Gerontología y Geriatría [Internet]. 1998 [citado 20/02/23]; 18(1): 21-38. Disponible en: https://pesquisa.bvsalud.org/portal/resource/pt/lil-246953?lang=es
11. León ML, Medina MI, Castellanos RI, Portillo Z, Jaramillo R, Limón A. Síndrome de fragilidad en el adulto mayor y la sobrecarga de su cuidador primario. Rev Mex Med Fam [Internet]. 2020 [citado 20/02/23]; 7: 72-7. Disponible en: https://pdfs.semanticscholar.org/f9c4/381fe19d833e2d54473bf4ddac5756ba0ab6.pdf?_ga=2.212015572.1157937987.1669074754-1702663082.1623456049
12. López M, Montoya V, Rodríguez L, Foronda LV, Morales SA. Experiencias y formación de cuidadores informales de pacientes en el municipio de Envigado [Tesis] Universidad CES; 2019 [citado 20/02/23]. Disponible en: https://repository.ces.edu.co/bitstream/handle/10946/4856/1010030559_2020.pdf?sequence=5
13. González M, Puig M, Rodríguez P, Zabaleta E. Estudio prospectivo de la incidencia de eventos cardiovasculares en adultos jóvenes y su relación con el síndrome metabólico. Atención Primaria [Internet]. 2018 [citado 20/02/23]; 50(1): 67–69. Disponible en: https://www.elsevier.es/es-revista-atencion-primaria-27-articulo-estudio-prospectivo-incidencia-eventos-cardiovasculares-S0212656717300598
14. Morán R. Síndrome de sobrecarga en cuidadores informales principales de pacientes con esquizofrenia y trastorno bipolar del hospital policlínico arce 2018 [Tesis] Universidad de El Salvador; 2019 [citado 20/02/23]. Disponible en: https://docs.bvsalud.org/biblioref/2021/03/1151375/577-11106286.pdf
15. Yepes CE, Arango AL, Salazar A, Arango EM, Jaramillo AL, Mora JE, et al. El oficio de cuidar a otro: “Cuando mi cuerpo está aquí́ pero mi mente en otro lado”. Revista Ciencias De La Salud [Internet]. 2018 [citado 20/02/23]; 16(2): 294-310. Disponible en: https://doi.org/10.12804/revistas.urosario.edu.co/revsalud/a.6771
16. Sola AIF, Paravic T. Nivel de adaptación y afrontamiento en una agrupación de cuidadores informales de pacientes con Alzheimer y apoyo social percibido [Tesis] Universidad de Concepción; 2022 [citado 20/02/23]. Disponible en: http://repositorio.udec.cl/bitstream/11594/9687/1/TESIS%20NIVEL%20DE%20ADAPTACION%20Y%20AFRONTAMIENTO.pdf
17. Rodríguez A, Pérez L. Estrategias de afrontamiento en cuidadoras de personas con alzhéimer. Influencia de variables personales y situacionales. Revista Española de Discapacidad [Internet]. 2019 [citado 20/02/23]; 7(1): 153-171. Disponible en: https://dialnet.unirioja.es/servlet/articulo?codigo=6955455
18. Velázquez Y, Espín AM. Repercusión psicosocial y carga en el cuidador informal de personas con insuficiencia renal crónica terminal. Rev Cubana Salud Pública [Internet]. 2014 [citado 20/02/23]; 40(1): 3-17. Disponible en: http://scielo.sld.cu/scielo.php?script=sci_arttext&pid=S0864-34662014000100002&lng=es.
19. Jaimes MA, Sierra MJ. Sobrecarga en Cuidadores Informales de personas con Discapacidad Intelectual pertenecientes a la fundación FANDIC de la ciudad de Bucaramanga [Tesis]. Universidad Autónoma de Bucaramanga; 2022 [citado 20/02/23]. Disponible en: https://repository.unab.edu.co/bitstream/handle/20.500.12749/16735/2022_Tesis_Maria_Alejandra_Jaimes.pdf?sequence=1&isAllowed=y
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